
Last night I went to
Irabina for a talk by Junee Waites.
Junee wrote a book called
Smiling At Shadows which is the story about how her and her husband Rod raised their son Dane who is Autistic.
My oldest friend Marie-Claire put me onto this book. She said "there are hundreds of books about Autism but this one is my favourite."
It is a wonderful book and Dane also went to Irabina just like Elton. Dane is the volunteer gardener every second Thursday and he is very tall and fit with a big smile.
Junee spoke beautifully and I was hanging from her every word. Her story gives lots of parents with a child with a disability hope.
Junee and Rod made it over the hurdles with Dane, only for Rod to have cancer and Junee suffers with Parkinsons Diseases. I don't know why so many people have battles after battles in life. It doesn't seem fair.
I took away so many great pieces of advice and inspiration from her talk. It was also nice to know that Ben and I have thought along the same track as Junee and Rod with regards to looking at big pictures and the future.
They always knew they wouldn't raise a rhodes scholar but instead opted to give Dane 'life experiences' - through learning a musical instrument, camping, kyacking and being involved in sport and travelling.
Dane can do so many things and is living a full life because he and his family accepted very early on that there is no need to place pressure on an outcome but to simply open doors to experience and encourage learning and living at your own pace.
This is the life we want for our son.
Many times I felt so close to tears. Junee was speaking my thoughts outloud, only it was like looking in a crystal ball. I hope I can speak as well as her when Elton is a grown man.
I waited in the line after the talk and I got to meet Rod, Junee and Dane and they signed my book which I asked them to dedicate to Marie-Claire. Living in Perth in a remote part of the country, she won't get to meet them, so I will send this book to her at the postie tomorrow. I still can't believe that my oldest friend (about 34 years we have known each other) and I and our sons have Autism. Must of been all those lolly bananas we used to eat.
Today at Irabina in OT I had a teary moment which doesn't happen often I think from the talk last night and that by Friday we are all feeling a bit tired, but tonight is
Masterchef with Matt Preston's pink pants and cowboy boots which makes me feel better just by looking at his legs and........

this morning - a good hair day.
It's not all bad.
Happy Weekend to you.
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